The web I tend

Living with a long term condition that begins at birth involves so many unplanned needs. It invites a diverse set of resources to help. Putting them all together to support the flourishing of a person involves building and integrating new knowledge. If a condition is present from birth, everything changes as the child grows and develops. Cristin’s experience helping her son, Gabriel, invites us to understand the journey

Transcription > Pdf, 102.4 kB.

Guests

Cristin Lind

Project Manager, European Patients’ Academy on Therapeutic Innovation (EUPATI) Sweden, Swedish Disability Rights Federation and Facilitator-in-Preparation, Center for Courage and Renewal


Supplementary materials

Readings

Cristin Lind, Care Mapping, https://cristinlind.com/newcaremap/

Antonelli RC, & Lind C. Care Mapping: A How-To Guide for Professionals

Antonelli, Richard C., and Cristin Lind. Care Mapping: A How-To Guide for Patients and Families